Hello, thank you for taking the time out of your day to be here with me. My name is Sarah Howard. I am a wife to my husband Cory for 18 years. We have two beautiful boys Wyatt 13 and Oliver 8 who are full of adventure.

January 2022 our worlds were turned upside down with a positive blood test for Systemic Scleroderma. (Please google it) a very rare fatal disease that effects everyone different. Second testing in February for clarification. Sadly I have fascia, musculoskeletal, heart, kidney, thyroid, bone and lung involvement. My lips are starting to harden around the edges with multiple broken capillaries. When I first learned what this disease was I made a goal to live to 50. Now that I understand the different types and phases I will be lucky to hit 40 It’s ok. I just love different now and I spend my time with those who make my heart feel happy.

So few Dr.s who even know what Scleroderma is let alone how to treat or manage it. My first positive test he told me I was fine! My second test he said “What is Scleroderma”? Now we are learning together but because of the rareness I have to travel 5+ hours to a specialist in Seattle, WA and possibly out of state for scans like CTs or MRIs which my insurance won’t cover because I can’t do 6 weeks physical therapy first. That’s not an option for my disease and it would be torcher to put me through and cause a full body flare up. Having to fight for my life through the medical system while dying is something I don’t wish on anyone.

This go fund me will help with all medical and dental problems scleroderma causes that are not covered by insurance which most treatments are not because they are experimental since there is no cure. Plus any dental because my gums are receding fast in the front bottom and bones decay with scleroderma meaning I will need teeth pulled an explants/retainers made which is not cheap. If we have enough we will use it to make as many memories with our boys as we can while I still can. I hope with all my soul they find a cure for this.

I made a page to follow every step of my journey including any trips I get to take while I still can. (I’m only 93 lbs and losing. My muscles are disappearing and my strength dwindling.) To update on dr apts and testing. I have been very open and public about my health journey because I never want anyone to feel this way. No one should have to sit on the bed of a child sleeping and ask how they are going to manage without me. I’m 37 years old and I’m planning my funeral instead of being able to plan my children's weddings.

I appreciate you for reading this far. Let’s find a cure for Scleroderma because I don’t wish this on anyone. I will continue to fight as long as I can. Here is my Facebook page to follow my journey. https://www.facebook.com/Fight-for-Sarah-Scleroderma-Awareness-107472515212378/

Hug your loved ones extra long. Our hugs in this house have a whole different meaning now. I truly love and appreciate you for your support however that may be.