Valor of Veda
Join Veda's journey with Sanfilippo Syndrome 🦄💜
Bike Giveaway!
Bike Giveaway!
Fundraiser by Christin Ulrich : Saving Veda
Fundraiser by Christin Ulrich : Saving Veda
I'm Christin, Mom to Veda. When Veda was born, Jericho and I thought we had our fairytale life. That this … Christin Ulrich needs your support for Saving Veda
VEDA ULRICH | Fighting to Cure Sanfilippo
VEDA ULRICH | Fighting to Cure Sanfilippo
Instagram SavingVeda
Instagram SavingVeda
Cure Sanfilippo Foundation
Cure Sanfilippo Foundation
A cure can't wait. The Foundation accelerates research to find a cure and/or treatment for Sanfilippo Syndrome (MPS III), childhood dementia.
Youtube Channel
Youtube Channel
Our daughter Veda has Sanfilippo syndrome. A terminal genetic disorder that is often referred to as "childhood Alzheimer’s". There is currently no FDA approved treatment for Sanfilippo Syndrome, but we hope that will soon change with increased awareness and research.
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