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2026 CMT Summit + Retreat
2026 CMT Summit + Retreat
Help Hereditary Neuropathy Foundation spread the word about Summit !
CMT Amazon Wishlist
CMT Amazon Wishlist
Allison Moore, Neurology News
Allison Moore, Neurology News
The founder and CEO at the Hereditary Neuropathy Foundation discussed how learning about patient experiences has influenced research in Charcot-Marie-Tooth disease. [WATCH TIME: 5 minutes]
HNF Reports from MDA Clinical & Scientific Conference
HNF Reports from MDA Clinical & Scientific Conference
NMD Pharma SYNAPSE-CMT Phase 2a Clinical Study Data Accepted for Late Breaking Oral Presentation at 2026 MDA Scientific & Medical Conference — NMD Pharma
NMD Pharma SYNAPSE-CMT Phase 2a Clinical Study Data Accepted for Late Breaking Oral Presentation at 2026 MDA Scientific & Medical Conference — NMD Pharma
Aarhus, Denmark, 12 February 2026 – NMD Pharma A/S, a clinical-stage biotechnology company dedicated to developing novel therapies to restore skeletal muscle health, today announced that top-line data results from its Phase 2a SYNAPSE-CMT study evaluating ignaseclant (formerly known as NMD670) in p
CMT Biobank Cities & Dates
CMT Biobank Cities & Dates
Help spread the word!
CMT Self Care Journal
CMT Self Care Journal
Webinar: CMT Biomarkers Can't Wait
Webinar: CMT Biomarkers Can't Wait
This webinar will bring together leading scientific experts, clinicians, and HNF program leaders to explore the urgent need for biomarker development and the...
CMT - Patient Resources
CMT - Patient Resources
Read about Allison Moore's MDA award
Read about Allison Moore's MDA award
CMT Meet-Ups Survey
CMT Meet-Ups Survey
We’re building a new community for people living with Charcot-Marie-Tooth (CMT), their families, and allies! This group will focus on connection, support, learning, and advocacy. To shape it around what YOU want and need, please take a few minutes to complete this short survey.
💊 CMT Neurotoxic Drug List
💊 CMT Neurotoxic Drug List
Watch Now: HNF x MDA Learning Series on CMT
Watch Now: HNF x MDA Learning Series on CMT
This MDA Learning Series took place on September 17 & 18, 2025, providing relevant, up-to-date information on care, research advancements, and support for pe...
👗 CMT Gowns that Give
👗 CMT Gowns that Give
CMT Disability Benefits Guide
CMT Disability Benefits Guide
CMT Work Accommodations
CMT Work Accommodations
💙 CMT Readers Club 📚
💙 CMT Readers Club 📚
Become a CMT Readers Club Volunteer! Developed by the CMT Dream Team and powered by the Hereditary Neuropathy Foundation (HNF), this national initiative invites you to bring real stories and representation into the classroom. As a volunteer reader, you’ll read a beautifully selected children’s book that reflects disability and CMT, then share your own story in a short, age-appropriate conversation. 💙 HNF provides the book, tools, and support—you bring your voice. Ready to spark empathy, awareness, and inclusion? Sign up today for next steps! 📚
BIG CMT SORD News!
BIG CMT SORD News!
CMT Simplified Podcast
CMT Simplified Podcast
CMT Biobank Sign Up!
CMT Biobank Sign Up!
Help spread the word!
Newly Diagnosed with CMT?
Newly Diagnosed with CMT?
CMT Pain Guide on Amazon!
Purple Diamond Press. Inc, Children's Books, Professional Publishing
Purple Diamond Press. Inc, Children's Books, Professional Publishing
July '25 | CMT Monthly Dose: CMT News & Resource
July '25 | CMT Monthly Dose: CMT News & Resource
ClinicalTrials for CMT 1 & 2
ClinicalTrials for CMT 1 & 2
💜 CMT Took Her Father. She’s Determined It Won’t Take Her Future
💜 CMT Took Her Father. She’s Determined It Won’t Take Her Future
Liz's CMT Surgery Diary & Guide
Liz's CMT Surgery Diary & Guide
HNF Partner: CMT-SORD Clinical Trial Update
HNF Partner: CMT-SORD Clinical Trial Update
AFO Guide & Checklist
AFO Guide & Checklist
Symptoms checklist
Symptoms checklist
CMT Dream Team!
CMT Dream Team!
Good Bad Things Film
Good Bad Things Film
Love and Disability
Love and Disability
CMT-Friendly Amazon Products
CMT-Friendly Amazon Products
CMT Essential Guide
CMT Essential Guide
CMT GRIN Stats
CMT GRIN Stats
Rock ‘n’ Roll Events
Rock ‘n’ Roll Events
Legacy & Wills
Legacy & Wills
Join CMT VIP Email List!
Join CMT VIP Email List!
Wearable Tech Study Delivers Strong Results for CMT Clinical Trials
Wearable Tech Study Delivers Strong Results for CMT Clinical Trials
CMT Self Care: A 30-Day Journal
CMT Self Care: A 30-Day Journal
Movement is Medicine Classes
Movement is Medicine Classes
New Gene Therapy Shows Potential in Early Trial for Charcot-Marie-Tooth Disease
New Gene Therapy Shows Potential in Early Trial for Charcot-Marie-Tooth Disease
CMT support/Safe space
CMT support/Safe space
Tips and Hacks
Tips and Hacks
JOIN GRIN Patient Registry
JOIN GRIN Patient Registry
Cannabis & CMT Webinar
Cannabis & CMT Webinar
EmBrace It Podcast
EmBrace It Podcast
Breaking News for SORD Deficiency Patients
Breaking News for SORD Deficiency Patients
Pediatrics and MITO
Pediatrics and MITO
🎥 FDA Message to the CMT Community!
🎥 FDA Message to the CMT Community!
CMT Genie
CMT Genie
TEDx Talk - Lainie Ishbia
TEDx Talk - Lainie Ishbia
Inclusive Employment
Inclusive Employment
ABCs of AFOs
ABCs of AFOs
3 New Drug Development Projects
3 New Drug Development Projects
AFOs for CMT Webinar
AFOs for CMT Webinar
CMT-Connect Webinars
CMT-Connect Webinars
Alan Jackson Article
Alan Jackson Article
CMT Thrive Guide
CMT Thrive Guide
VENMO - Donate to Impact CMT Research & Programs!
VENMO - Donate to Impact CMT Research & Programs!
Neurotoxic Drug list
Neurotoxic Drug list
Patient Care
Patient Care
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