@hellomynameisreed
All things Reed in one location!
Rally Merch Shop
Rally Merch Shop
Store of Rally for Reed.
HelloMyNameisReed.com
HelloMyNameisReed.com
Reedâs Website
Reedâs Website
Reedâs Instagram
Reedâs Instagram
Reedâs Venmo
Reedâs Venmo
Use Venmo to connect with Hellomynameisreed (@hellomynameisreed) - Rally for Reed was created to help fund a cure for Morquio A syndrome (MPS IV) a lysosomal storage disorder, affecting approximately 1 in every 300k births
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Press
Proceeds from the fundraiser will not only help in Reedâs care and treatment, but also will fund research to find a cure for Morquio A syndrome.
Give Tax Free
Give Tax Free
What is Morquio Syndrome
What is Morquio Syndrome
Morquio syndrome is a rare inherited birth defect that occurs in one of every 200,000 births. Symptoms include spine curvatures, nerve damage, inguinal hernia, as well as heart, liver and eye anomalies.
Nemours Childrens Hospital
Nemours Childrens Hospital
Nemours Children's is one of the foremost health care systems in the world for morquio syndrome diagnosis and treatment in children.
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