@hemophiliafed
Hemophilia Federation of America
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HFA Joins 43 Other Organizations in Urging Protection from Further Medicaid Cuts - Hemophilia Federation of America
HFA Joins 43 Other Organizations in Urging Protection from Further Medicaid Cuts - Hemophilia Federation of America
On April 22, 2026, Hemophilia Federation of America joined 43 other patient and rare disease organizations, which make up the Partnership to Protect Coverage, in urging federal leaders in to protect additional cuts or policies impacting Medicaid and the Affordable Care Act. The letter, addressed to Senate Majority Leader John Thune, Senate Minority Leader Chuck […]
Take Action Now! Restore the CDC.
Take Action Now! Restore the CDC.
Scholarships
Scholarships
The Future of Blood Safety: Shanthi Hegde advocates for federal oversight in Washington | School of Public Health | Brown University
The Future of Blood Safety: Shanthi Hegde advocates for federal oversight in Washington | School of Public Health | Brown University
With mass layoffs at the CDC dismantling decades of oversight born from the HIV/AIDS crisis, blood safety advocates like MPH student Shanthi Hegde warn that repeating the deadly mistakes of the past threatens maternal health, trauma care and national security.
Member Organizations
Member Organizations
Healthy Living - Hemophilia Federation of America
Healthy Living - Hemophilia Federation of America
Maintaining a healthy lifestyle with nutrition and movement is a critical part of managing a bleeding disorder.
Why Copay Fairness Matters for the Bleeding Disorders Community - Hemophilia Federation of America
Why Copay Fairness Matters for the Bleeding Disorders Community - Hemophilia Federation of America
For people living with bleeding disorders, access to treatment isn’t optional, it’s life-sustaining. Yet every year, too many individuals and families are forced to navigate a healthcare system that makes essential care harder to afford, harder to access, and harder to sustain. At HFA, we believe in building clear pathways to care: systems that are […]
The REAL HFA TikTok
The REAL HFA TikTok
NEW Learning Central
NEW Learning Central
Hemophiliafed.org
Hemophiliafed.org
Join Us for Symposium New Orleans April 16-19, 2026 Visit the Symposium Website Bleeding disorders are some of the rarest and most expensive diseases to treat over the lifetime of a patient. Learn how HFA assists patients New Patients & Families A new bleeding disorder diagnosis in the family is hard on everyone. HFA works […]
HFA Advocacy Hub: Turning Your Voice Into Action
HFA Advocacy Hub: Turning Your Voice Into Action
The HFA Advocacy Hub empowers the bleeding disorders community to take action, share stories, and advocate for access to care and patient protections.
HFA Symposium 2026 Registration
HFA Symposium 2026 Registration
Advocacy Network Interest Form
Advocacy Network Interest Form
Five Pillars of Public Policy - Hemophilia Federation of America
Five Pillars of Public Policy - Hemophilia Federation of America
A long and healthy life is America’s duty to people with bleeding disorders
HFA Youtube
HFA Youtube
Hemophilia Federation of America (HFA) is a national nonprofit organization that assists and advocates for the bleeding disorders community. #hemophiliafed
HFA PROJECT CALLS
HFA PROJECT CALLS
View this form on Formsite
Employment Support
Employment Support
Juggling a chronic condition and maintaining your livelihood can be complex. These resources include legislation to protect your rights, job search tools, interview tips, and self-advocacy education.
Helping Hands
Helping Hands
Helping Hands Program – Limited Reopening The Helping Hands program is now open on a limited basis for 2026. Due to funding constraints, a maximum of 20 requests will be approved each month. Once monthly funds are depleted, the application portal will close and reopen on the 1st of the following month. How it works: […]
Mental Health Support
Mental Health Support
Learn about signs that indicate someone is in crisis, common warning signs of suicide, and what to do or say if someone is in crisis/at risk of suicide.
Safety Tips - English
Safety Tips - English
Safety Tips - Spanish
Safety Tips - Spanish
Bleeding Disorders 101
Bleeding Disorders 101
Hemophilia Treatment Centers
Hemophilia Treatment Centers
History of Bleeding Disorders
History of Bleeding Disorders
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