Hypersomnia Foundation
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Instagram
Email
Email
TikTok
TikTok
YouTube
YouTube
IH Day - Information
IH Day - Information
Idiopathic Hypersomnia Day (IH Day) is devoted to informing and acknowledging idiopathic hypersomnia on a global scale.
#WhereInTheWorldIH Graphic
#WhereInTheWorldIH Graphic
Access Google Forms with a personal Google account or Google Workspace account (for business use).
#WhereInTheWorldIH Video
#WhereInTheWorldIH Video
Access Google Forms with a personal Google account or Google Workspace account (for business use).
#BeyondSleepy Baltimore Conference Registration
#BeyondSleepy Baltimore Conference Registration
2026-06-12, Baltimore, MD
Book your hotel at special rates for #BeyondSleepy Conference
Book your hotel at special rates for #BeyondSleepy Conference
Book your hotel room at special rates for your upcoming event.
Illuminate Brain Fog | Sleep Consortium
Illuminate Brain Fog | Sleep Consortium
Join us in helping to ILLUMINATE BRAIN FOG To leverage learnings from the Illuminate Hypersomnia initiative, Sleep Consortium is excited to launch Illuminate Brain Fog, a new research initiative focused on improving how brain fog is defined, measured, and understood in people living with Central Disorders of Hypersomnolence (CDoH). Sleep Consortium has partnered with RARE-X […]
Events
Building a Global IH Community: Michelle Chadwick on Advocacy, Awareness, and Australia’s Challenges
Building a Global IH Community: Michelle Chadwick on Advocacy, Awareness, and Australia’s Challenges
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
April UNIGHT – April 27th register now
April UNIGHT – April 27th register now
May Support4Supporters - May 13th
May Support4Supporters - May 13th
Community
Young Adults with Hypersomnia Group Chat
Young Adults with Hypersomnia Group Chat
Hypersomnia Foundation YouTube Channel
Hypersomnia Foundation YouTube Channel
The Hypersomnia Foundation is a 501(c)3, non-profit organization created to advocate, educate, and provide resources for research on behalf of people affected by hypersomnias. OUR MISSION The Hypersomnia Foundation engages, informs and champions our global community to improve the lives of people with idiopathic hypersomnia and related sleep disorders. OUR VISION Fulfill the dream of restorative nighttime sleep and wide-awake days.
Hypersomnia Foundation | Official Merchandise | Bonfire
Hypersomnia Foundation | Official Merchandise | Bonfire
HF improves the lives of people with hypersomnia by increasing awareness of this rare sleep disorder and raising funds for research.
Hypersomnia Foundation Films
Caught In This Riptide
Caught In This Riptide
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
THE SPOON PROJECT
THE SPOON PROJECT
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
Hey Sleepyhead
Hey Sleepyhead
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
Clinical Trials
Narcolepsy With Cataplexy Clinical Research Study
Narcolepsy With Cataplexy Clinical Research Study
U.S. Food and Drug Administration Accepts New Drug Application and Grants Priority Review for Takeda’s Oveporexton (TAK-861) as a Potential First-in-Class Therapy for Narcolepsy Type 1｜Takeda Pharmaceuticals
U.S. Food and Drug Administration Accepts New Drug Application and Grants Priority Review for Takeda’s Oveporexton (TAK-861) as a Potential First-in-Class Therapy for Narcolepsy Type 1｜Takeda Pharmaceuticals
The FDA has accepted Takeda’s NDA and granted Priority Review for Oveporexton (TAK‑861), a potential first‑in‑class treatment for Narcolepsy Type 1.
Avadel Pharmaceuticals Announces Completion of Enrollment in Phase 3 REVITALYZ™ Trial in Idiopathic Hypersomnia | Avadel Pharmaceuticals PLC
Avadel Pharmaceuticals Announces Completion of Enrollment in Phase 3 REVITALYZ™ Trial in Idiopathic Hypersomnia | Avadel Pharmaceuticals PLC
Enrollment is now open for the ALBA Study
Enrollment is now open for the ALBA Study
Explore options for sleep disorders such as narcolepsy without cataplexy (NT2) and idiopathic hypersomnia (IH) through clinical research.
PRIME SURVEY
PRIME SURVEY
Jazz Pharmaceuticals Showcases Phase 4 Data Demonstrating Xywav® (calcium, magnesium, potassium, and sodium oxybates) Oral Solution Treatment Effects and Real-World Evidence at World Sleep and Psych Congresses | Jazz Pharmaceuticals plc
Jazz Pharmaceuticals Showcases Phase 4 Data Demonstrating Xywav® (calcium, magnesium, potassium, and sodium oxybates) Oral Solution Treatment Effects and Real-World Evidence at World Sleep and Psych Congresses | Jazz Pharmaceuticals plc
The impact of idiopathic hypersomnia on the social lives of young adults
The impact of idiopathic hypersomnia on the social lives of young adults
Share your experiences with idiopathic hypersomnia to help others.
Share your experiences with idiopathic hypersomnia to help others.
Strategic Research Grant - AASM Foundation
Strategic Research Grant - AASM Foundation
Clinical Trial in Low Sodium Oxybate is open for people with Idiopathic Hypersomnia | Mayo Clinic
Clinical Trial in Low Sodium Oxybate is open for people with Idiopathic Hypersomnia | Mayo Clinic
Living With YouTube Series
Dismissed for Decades: Margie’s 30-Year Journey to an Idiopathic Hypersomnia Diagnosis
Dismissed for Decades: Margie’s 30-Year Journey to an Idiopathic Hypersomnia Diagnosis
Rethinking Success, Safety, and Independence: Conversations for Young Adults With IH with Caitlin
Rethinking Success, Safety, and Independence: Conversations for Young Adults With IH with Caitlin
Fighting to Be Heard: Taylor Jackson’s Journey Through Dismissal and Diagnosis with IH
Fighting to Be Heard: Taylor Jackson’s Journey Through Dismissal and Diagnosis with IH
The Future of Treatment with Orexin Agonists With Deborah Hartman, PhD
The Future of Treatment with Orexin Agonists With Deborah Hartman, PhD
Navigating College with Idiopathic Hypersomnia with Laura Z.
Navigating College with Idiopathic Hypersomnia with Laura Z.
Insights on Adapting Radical Acceptance and Self Compassion as a PWIH With Caitlin
Insights on Adapting Radical Acceptance and Self Compassion as a PWIH With Caitlin
Breaking Barriers with Patient-Owned Data Platforms With Karmen Trzupek
Breaking Barriers with Patient-Owned Data Platforms With Karmen Trzupek
How CBT May Help Manage Your Symptoms With Dr. Shelby Harris
How CBT May Help Manage Your Symptoms With Dr. Shelby Harris
Press Releases
Alkermes plc Announces Agreement to Acquire Avadel Pharmaceuticals plc | Alkermes plc
Alkermes plc Announces Agreement to Acquire Avadel Pharmaceuticals plc | Alkermes plc
Centessa Pharmaceuticals Reports Financial Results for the Third Quarter of 2025 and Provides Update on Potential Best-in-Class Orexin Receptor 2 (OX2R) Agonist Program – Centessa Pharmaceuticals
Centessa Pharmaceuticals Reports Financial Results for the Third Quarter of 2025 and Provides Update on Potential Best-in-Class Orexin Receptor 2 (OX2R) Agonist Program – Centessa Pharmaceuticals
Alkermes Announces Positive Topline Results From Vibrance-1 Phase 2 Study of Once-Daily Alixorexton in Patients With Narcolepsy Type 1 | Alkermes plc
Alkermes Announces Positive Topline Results From Vibrance-1 Phase 2 Study of Once-Daily Alixorexton in Patients With Narcolepsy Type 1 | Alkermes plc
Harmony Biosciences Provides Update on the Status of the Supplemental New Drug Application for Pitolisant in Idiopathic Hypersomnia | Harmony Biosciences
Harmony Biosciences Provides Update on the Status of the Supplemental New Drug Application for Pitolisant in Idiopathic Hypersomnia | Harmony Biosciences
Avadel Pharmaceuticals Announces FDA Approval of LUMRYZ™ (sodium oxybate) Extended-Release Oral Suspension (CIII) for the Treatment of Cataplexy or Excessive Daytime Sleepiness in Patients 7 Years of Age and Older with Narcolepsy | Avadel Pharmaceuticals
Avadel Pharmaceuticals Announces FDA Approval of LUMRYZ™ (sodium oxybate) Extended-Release Oral Suspension (CIII) for the Treatment of Cataplexy or Excessive Daytime Sleepiness in Patients 7 Years of Age and Older with Narcolepsy | Avadel Pharmaceuticals
Low-sodium oxybate improved symptoms in adults with idiopathic hypersomnia: A Plain Language Summary of Publication
Low-sodium oxybate improved symptoms in adults with idiopathic hypersomnia: A Plain Language Summary of Publication
Alkermes Announces Initiation of Vibrance-2 Phase 2 Study Evaluating ALKS 2680 for the Treatment of Narcolepsy Type 2 | Alkermes plc
Alkermes Announces Initiation of Vibrance-2 Phase 2 Study Evaluating ALKS 2680 for the Treatment of Narcolepsy Type 2 | Alkermes plc
HARMONY BIOSCIENCES RECEIVES U.S. FOOD AND DRUG ADMINISTRATION APPROVAL FOR WAKIX® (PITOLISANT) IN PEDIATRIC PATIENTS WITH NARCOLEPSY | Harmony Biosciences
HARMONY BIOSCIENCES RECEIVES U.S. FOOD AND DRUG ADMINISTRATION APPROVAL FOR WAKIX® (PITOLISANT) IN PEDIATRIC PATIENTS WITH NARCOLEPSY | Harmony Biosciences
Harmony Biosciences announces exclusive agreement to develop and commercialize TPM-1116
Harmony Biosciences announces exclusive agreement to develop and commercialize TPM-1116
Alkermes Announces Positive Topline Results From Phase 1b Study of ALKS 2680
Alkermes Announces Positive Topline Results From Phase 1b Study of ALKS 2680
Press Release : Rare Sleep Disorder More Prevalent Than Previously Thought
Press Release : Rare Sleep Disorder More Prevalent Than Previously Thought
Harmony Biosciences Press Release - FDA Grants Priority Review
Harmony Biosciences Press Release - FDA Grants Priority Review
HF Links
Your Donation Makes a Difference - Hypersomnia Foundation
Your Donation Makes a Difference - Hypersomnia Foundation
Visit Our Website
Visit Our Website
Top Resources from the Hypersomnia Foundation
Top Resources from the Hypersomnia Foundation
Update or join the CoRDS Patient Registry!
Update or join the CoRDS Patient Registry!
CoRDS Fillable Form
CoRDS Fillable Form
Tips for Supporters - Hypersomnia Foundation
Tips for Supporters - Hypersomnia Foundation
Subscribe to SomnusNooze
Subscribe to SomnusNooze
Videos & Podcasts - Hypersomnia Foundation
Videos & Podcasts - Hypersomnia Foundation
Things to consider when making an emergency medical plan
Things to consider when making an emergency medical plan
Anesthesia, Hospitalization and Emergency Planning tool kit
Anesthesia, Hospitalization and Emergency Planning tool kit
Sleep Hygiene and What It Means for People Who Have Hypersomnias - Hypersomnia Foundation
Sleep Hygiene and What It Means for People Who Have Hypersomnias - Hypersomnia Foundation
Health and Prescription Medication Insurance Denials and Appeals
Health and Prescription Medication Insurance Denials and Appeals
Long-COVID & Sleep Disorders Study Report
Long-COVID & Sleep Disorders Study Report
I Have IH Campaign Reveals Patient and Supporter Perspectives on the Impact of Idiopathic Hypersomnia | Jazz Pharmaceuticals
I Have IH Campaign Reveals Patient and Supporter Perspectives on the Impact of Idiopathic Hypersomnia | Jazz Pharmaceuticals
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