Penn FTD Center
The University of Pennsylvania Frontotemporal Degeneration Center
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Staff Highlight - Jordana Woodford, MA, Ed.S
Staff Highlight - Jordana Woodford, MA, Ed.S
Get to know the Penn FTD Center staff! Learn more this month from Penn FTD Center Jordana Woodford, MA, Ed.S in the responses below!What is your role at the Penn FTD Center and how long have you been working at the center?I am a clinical research coordinator and having been working at the Penn FTD Center for over 3 years. In the past, I worked on coordinating the CReATe Phenotype Genotype Biomarkers 2 (PGB2) and Trial Ready studies with Dr. Corey McMillan. I also worked with the team at the Penn
Philly NeuroArts Network
Philly NeuroArts Network
Mission
What is UNICORN?
What is UNICORN?
The Penn FTD center is a specialized group of clinicians, neuropsychologists, and scientists researching frontotemporal dementia (FTD) and related disorders. FTD and related disorders can be difficult to diagnosis since the symptoms experienced often show doctors where in the brain something is wrong but not why. Doctors cannot easily see and distinguish disease causing proteins within the brain during life, often leaving neurodegenerative diagnoses unconfirmed until autopsy. To better diagnose,
What Is Frontotemporal Dementia? Types, Causes & Treatment
What Is Frontotemporal Dementia? Types, Causes & Treatment
Penn FTD Center’s Research MRIs: What to Know?
Penn FTD Center’s Research MRIs: What to Know?
'I lost me': How frontotemporal dementia changed a mind and a marriage
'I lost me': How frontotemporal dementia changed a mind and a marriage
The Unexpected Journey by Emma Heming Willis
The Unexpected Journey by Emma Heming Willis
Shifting Paradigms: APOE in Dyslipidemia & Patient Voices in Neurogenetics | DNA Dialogues: Conversations in Genetic Counseling Research
Shifting Paradigms: APOE in Dyslipidemia & Patient Voices in Neurogenetics | DNA Dialogues: Conversations in Genetic Counseling Research
The Importance of Offering Genetic Counseling and Testing to All Persons Diagnosed With Frontotemporal Degeneration Spectrum Disorders - PubMed
The Importance of Offering Genetic Counseling and Testing to All Persons Diagnosed With Frontotemporal Degeneration Spectrum Disorders - PubMed
Webinar: Genetics of ALS - What to Know and Why It Matters, Regardless of Family History
Webinar: Genetics of ALS - What to Know and Why It Matters, Regardless of Family History
Subscribe to Our Newsletter | Penn FTD Center
Subscribe to Our Newsletter | Penn FTD Center
2025 World FTD Awareness Week | Penn FTD Center
2025 World FTD Awareness Week | Penn FTD Center
Research Roundup
Research Roundup - October 2025
Research Roundup - October 2025
Read the below Research Roundup from Penn FTD Center Postdoctoral Fellow Barbara Spencer, PhD.Terms to Know:Amyotrophic lateral sclerosis (ALS) – a neurodegenerative disease that causes motor symptoms such as muscle weakness and paralysis.Frontotemporal degeneration (FTD) – a neurodegenerative disease that causes cognitive and behavioral changes such as executive dysfunction, apathy, and speech/language impairment.C9orf72 repeat expansion – a genetic mutation that can cause FTD, ALS, or both.Wha
Research Roundup - August 2025
Research Roundup - August 2025
Research Roundup - June 2025
Research Roundup - June 2025
Read the below Research Roundup from Penn FTD Center Postdoctoral Fellow Rory Boyle PhD.Terms to Know:Trisomy 21: Genetic condition, known as Down syndrome, that occurs were a person has three copies of chromosome 21, instead of the usual two copies.Amyloid-beta: a toxic protein that is found in the brains of Alzheimer’s disease patients.APP gene: the amyloid-beta precursor protein gene that is located on chromosome 21. This gene increases production of amyloid-beta and people with Down syndrome
Research Roundup - May 2025
Research Roundup - May 2025
Research Roundup - April 2025
Research Roundup - April 2025
Blog Posts
December 2025 Blog Post
December 2025 Blog Post
The holidays can bring joy, connection, and celebration, but they can also present unique challenges for families supporting a loved one living with frontotemporal dementia (FTD). Changes in routine, crowded gatherings, and sensory overload can quickly become overwhelming. With a bit of planning and a focus on comfort, you can create moments that feel meaningful and manageable for everyone. Here are some practical strategies to help your loved one and your whole family navigate the season more s
Penn FTD Center 2025 Caregiver Conference Keynote Speaker - Linde Jacobs
Penn FTD Center 2025 Caregiver Conference Keynote Speaker - Linde Jacobs
August 2025 Blog Post
August 2025 Blog Post
My name is Samantha Dengel, and I am a Clinical Research Coordinator at the Penn FTD Center. During my time at the Penn FTD Center, I have had the opportunity to meet so many wonderful research participants and their family members. In the below posting, I conducted an interview with the spouse of a research participant with frontotemporal dementia (FTD). The goal of this interview is to shed light on what it is like to care for and love someone with FTD and amplify caregiver voices. Names and i
July 2025 Blog Post
July 2025 Blog Post
When people ask what I do for a living, I say I work in clinical research, which doesn’t reveal much at first. But when I mention that I work on studies that involve frontotemporal dementia (FTD), it usually opens the door to a deeper conversation.One portion of my role is serving as our site’s Project Manager for the ALLFTD study, which is an observational study that enrolls several different groups of people. This includes people with FTD, as well as people who may be at risk of developing FTD
June 2025 Blog Post
June 2025 Blog Post
May 2025 Blog Post
May 2025 Blog Post
April 2025 Blog Post
April 2025 Blog Post
March 2025 Blog Post
March 2025 Blog Post
Staff Highlight
Staff Highlight - Marianthi Hareras
Staff Highlight - Marianthi Hareras
Get to know the Penn FTD Center staff! Learn more this month from Penn FTD Center Marianthi Hareras in the responses below!What is your role at the Penn FTD Center and how long have you been working at the center?I am a clinical research coordinator on the observational studies team. I work on the core UNICORN protocol which is our center's main observational research repository. I also am a coordinator for the ancillary PET studies our center offers certain types of Frontotemporal Dementias and
Staff Highlight - Ashlyn O’Halloran
Staff Highlight - Ashlyn O’Halloran
Staff Highlight - Emily Xie
Staff Highlight - Emily Xie
Get to know the Penn FTD Center staff! Learn more this month from Penn FTD Center Emily Xie in the responses below!What is your role at the Penn FTD Center and how long have you been working at the center?I first joined the Penn FTD Center as a histopathology research specialist in the lab. After transitioning into a clinical research coordinator role, I became a team lead for our Core UNICORN, DLB Consortia, and PET studies. Now, as a research project manager that’s been with the center for ove
Staff Highlight - Cara Joyce
Staff Highlight - Cara Joyce
Staff Highlight - Dahlia Kamel
Staff Highlight - Dahlia Kamel
Staff Highlight - Quinn Hlava
Staff Highlight - Quinn Hlava
Staff Highlight - Jessica Legaspi
Staff Highlight - Jessica Legaspi
Staff Highlight - Cayla Andrews
Staff Highlight - Cayla Andrews
Staff Highlight - Alexandra Tavani
Staff Highlight - Alexandra Tavani
Staff Highlight - Chigozie Ibe
Staff Highlight - Chigozie Ibe
Staff Highlight - Lauren Bracken
Staff Highlight - Lauren Bracken
Age of Aging Podcast
Okay, Let's Talk About Sex and Dementia
Okay, Let's Talk About Sex and Dementia
Transforming a System of Care
Transforming a System of Care
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
Early Onset Caregiving
Early Onset Caregiving
From Surviving to Thriving After 50
From Surviving to Thriving After 50
The world is getting older—and that reality is what inspired this podcast. Thanks to advances in medicine, healthier lifestyles, and improved living conditio...
Diet, Exercise and.... Doodling?
Diet, Exercise and.... Doodling?
Before I Go: Can We Talk?
Before I Go: Can We Talk?
"I Had My Old Girl Back" - Age of Aging Season 3 Premiere
"I Had My Old Girl Back" - Age of Aging Season 3 Premiere
Website & Social Media
Penn FTD Center Website
Penn FTD Center Website
Penn FTD Center | Facebook
Penn FTD Center | Facebook
Penn FTD Center | Instagram
Penn FTD Center | Instagram
Penn FTD Center | LinkedIn
Penn FTD Center | LinkedIn
Penn FTD Center | X (formerly Twitter)
Penn FTD Center | X (formerly Twitter)
Penn FTD Center | Bluesky
Penn FTD Center | Bluesky
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