@thelongcutielegacy
Sharing Long QT information and stories to raise awareness ❤️
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Hope for the Long Run: Kayla’s LQT1 Journey — Thryv Therapeutics
Hope for the Long Run: Kayla’s LQT1 Journey — Thryv Therapeutics
I was 15 the first time I passed out. One moment I was overwhelmed by school and rushing to my next class; the next, my best friend was shaking me awake on the floor. In small-town USA, without health coverage, no further testing was done. I was told it must have been a panic attack.
My Long QT Syndrome website
My Long QT Syndrome website
Sharing knowledge about Long QT Syndrome, raising awareness and supporting patients.
Why Voices Like Kat’s Matter: A Journey with LQTS — Thryv Therapeutics
Why Voices Like Kat’s Matter: A Journey with LQTS — Thryv Therapeutics
Kathryn, better known as Kat, has a journey with Long QT Syndrome (LQTS) that is marked by persistence, discovery, and ultimately, hope.
The Heart of a Cheerleader: Liv’s Journey with LQTS2 — Thryv Therapeutics
The Heart of a Cheerleader: Liv’s Journey with LQTS2 — Thryv Therapeutics
At just eight years old, Olivia Rey is already learning to navigate life with strength—and a whole lot of sparkle. She has Long QT Syndrome Type 2 (LQTS2), a rare and potentially serious heart rhythm condition. But Liv isn’t about to let it slow her down.
Eleanor’s Story: The Tiny Heart That Changed Everything — Thryv Therapeutics
Eleanor’s Story: The Tiny Heart That Changed Everything — Thryv Therapeutics
In 2020, at just 24 weeks pregnant, Lena faced the devastating fear that her baby, Eleanor, was in heart failure and might not survive.
Jana’s Story: How CPR and an AED Saved Her Life — Thryv Therapeutics
Jana’s Story: How CPR and an AED Saved Her Life — Thryv Therapeutics
On January 2, 2019, at just 33 years old, Jana suffered a sudden cardiac arrest (SCA).
Jenylyn’s Story of Survival and Advocacy — Thryv Therapeutics
Jenylyn’s Story of Survival and Advocacy — Thryv Therapeutics
On July 10, 2005, Jenylyn experienced a life-changing moment. While in the bathroom, she collapsed unexpectedly.
Help raise £750 to fund a piece of artwork/mural for the end of life care room at Royal Bolton Hospital.
Help raise £750 to fund a piece of artwork/mural for the end of life care room at Royal Bolton Hospital.
Iʼm raising money to fund a piece of artwork/mural for the end of life care room at Royal Bolton Hospital for Isla’s birthday present.. Support this JustGiving Crowdfunding Page.
Forever in Our Hearts: Landen’s Brave Battle with LQTS — Thryv Therapeutics
Forever in Our Hearts: Landen’s Brave Battle with LQTS — Thryv Therapeutics
Landen was a walking, talking, basketball-playing, laughing, loving miracle. Nothing could keep him from living life on his terms.
Long QT | Spaulding Pays
Long QT | Spaulding Pays
Shake it for Shea - Shea’s LQTS Story — Thryv Therapeutics
Shake it for Shea - Shea’s LQTS Story — Thryv Therapeutics
Baby Shea came into the world, early, in dramatic style. She needed resuscitation immediately after birth, and on her second day of life, Shea’s heart went into a type of arrhythmia called Torsades de Pointes. Doctors estimated that Shea’s QT interval was over 700 (normal is <440ms).
Shake It For Shea 💃
Shake It For Shea 💃
A fundraising gala for Long QT Syndrome research
Heather’s LQTS Story — Thryv Therapeutics
Heather’s LQTS Story — Thryv Therapeutics
In February 2018, Heather, the Curriculum Director of her local school district, was joking and chatting with colleagues in the conference room. All of a sudden, she felt the room begin to spin, felt nauseous, and attempted to leave for the restroom. She managed only two steps towards the door befor
Azariah’s LQTS Story — Thryv Therapeutics
Azariah’s LQTS Story — Thryv Therapeutics
Baby Azariah, whose name means ‘God is my help’, was born prematurely and spent 33 days in NICU (Neonatal intensive care unit). He was initially rushed to NICU due to an abnormal heart rate. Fortunately, the hospital had the state’s best paediatric electrophysiologist and diagnosed Azariah with a se
The Long Cutie
The Long Cutie
Dave Hutton and his Long Cutie, Isla — Thryv Therapeutics
Dave Hutton and his Long Cutie, Isla — Thryv Therapeutics
Dave Hutton is a school teacher by profession, and a Long QT Syndrome caregiver by devotion. Upon his daughter Isla’s diagnosis with Long QT Syndrome Type 3 in 2016, Dave left teaching to be the full-time caregiver to his little girl.
Thryv Therapeutics
Thryv Therapeutics
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