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National Organization for Rare Disorders (NORD)
@RareDiseases
#NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ nordrare.bsky.social
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rarediseases.org
Joined October 2009
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  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 28, 2018
    It's here! Today is #RareDiseaseDay! Retweet to show your support for the #raredisease community today!
  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 28, 2019
    The big day is here! Today is Rare Disease Day and it's time to Show Your Stripes! How are you getting involved? Why is this day important to you? Share on social media using the hashtags #RareDiseaseDay and #ShowYourStripes to make an impact and raise awareness!
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  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Mar 1, 2019
    What an incredible way to close out #RareDiseaseDay 2019 in the United States! Thank you @EmpireStateBldg for lighting up New York City in honor of the biggest day of the year for 350 million people around the globe impacted by #rarediseases. #ShowYourStripes #ShowYourRare
  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 25, 2018
    With every click until #RareDiseaseDay, you will raise $1 for #raredisease research. Make a difference here: ow.ly/YBKXo
  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 28, 2021
    The big day is here -- today is Rare Disease Day and it's time to Show Your Stripes! How are you getting involved? Why is this day important to you? Share you answer on social media using the hashtags #RareDiseaseDay and #ShowYourStripes.
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  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 28, 2022
    Today is Rare Disease Day! 🦓 It's time to Show Your Stripes! How are you getting involved? Why is this day important to you? Share you answer on social media using the hashtags #RareDiseaseDay and #ShowYourStripes. Learn more at: rarediseaseday.us
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  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 29, 2024
    The rarest day of the year is finally here: it's #RareDiseaseDay! 🦓 Tag us in your posts today as you #ShowYourStripes and check out our website to add to our "Faces of Rare" dedication wall, download social media graphics, and more: bit.ly/2BrULms🦓
    Blue background with text reading, "Today is Rare Disease Day. Show Your Stripes for the 1 in 10 Americans with a rare disease." with cartoon zebras and NORD and Rare Disease Day logos.
    8.9K
  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 28, 2019
    How cool is this?! #NORD attended a special #RareDiseaseAwareness Event for #RareDiseaseDay today at @NYPDnews & the police cruisers were decked out in @rarediseaseday branding! Thank you NYPD for getting involved. #ShowYourStripes #ShowYourRare
  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 28, 2023
    Happy #RareDiseaseDay from the NORD staff! We’re proud to show our stripes in honor of our loved ones and the rest of the 25 million+ Americans living with #RareDiseases. Alone we are rare. Together we are strong. Don’t forget to tag NORD as you #ShowYourStripes today!
    NORD team members show their stripes for Rare Disease Day is this college of photos of NORD staff wearing striped clothing.
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  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 28, 2017
    Today we're very excited to premiere our one-of-a-kind PSA for #RareDiseaseDay! Learn how you can #DoYourShare at: doyourshare.com
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  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 27, 2018
    TOMORROW is #RareDiseaseDay! Retweet to raise awareness! What are you doing for the big day tomorrow?
  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Mar 1, 2024
    We had such a fun and meaningful #RareDiseaseDay with you all! From the TODAY Show Plaza in the morning to seeing the Empire State Building #LightUpForRare at night, rare was on display everywhere today! #ShowYourStripes #NYC
    Photo of NORD Zebra mascot holding a Show Your Stripes sign in midtown Manhattan at night, with the Empire State Building in the background lit up in Rare Disease Day colors of purple, green, blue, and pink.
    4.9K
  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 27, 2019
    Tomorrow, February 28, is #RareDiseaseDay! How will you #ShowYourStripes for the 25-30 million Americans impacted by #rarediseases? Tell us in the comments below! Not sure? Visit rarediseaseday.us for ways to get involved.
  • user avatar
    National Organization for Rare Disorders (NORD)
    @RareDiseases
    Feb 28, 2023
    Today is #RareDiseaseDay! 🦓 NORD is so thankful for everyone in our #RareDisease community, and we're honored every day to advocate alongside you. Tag us in your posts throughout the day as you celebrate! Learn more at this link and share it with others: bit.ly/RDD2023
    Blue zebra striped background with text reading, "Today is Rare Disease Day" and "Raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! Learn more at rarediseaseday.us" with NORD and Rare Disease Day logos.
    11K