Thursday, November 27, 2008

Happy Thanksgiving!

We have so many things to be grateful for. First, we are so grateful that Kacie is home and doing so much better. Monday she has a bunch of tests, it will be interesting to see how her kidneys are doing. Second, we are grateful that Brandon is sleeping and much more responsive and more like himself again. Third, we are grateful that Brady has had a full recovery and is saying more words everyday.

What would we do without the blessing of children and family and friends? We couldn't have made it through these past months without all the help from wonderful family and friends that have supported us so much.

Thank you!!!

Thursday, November 20, 2008

Kacie was really hoping that she was ready for more school, but after two days she got a bad cold and it really sucked the life out of her. She has not been able to go all this week, however, we are hoping that maybe tomorrow she can go for a little while. She has been so weak, I'm a little worried about her.

Friday, November 14, 2008

Attempt at School

Kacie is getting stronger and decided she wanted to go to school. She went all day on Wednesday and later that night some of the young women came to play games with her and have some fresh salsa and rootbeer floats. They had a lot of fun but she was completely exhausted that night. Thursday I gave her every opportunity to stay home but she still wanted to go. She made it until around 2:30 and today gave up on the idea of going to school. We'll see what next week brings. I think 1/2 a day might be better for awhile, but she really enjoys school and her teacher. Last night and this morning we didn't have to give any blood pressure meds, which was really cool. Maybe her kidneys are working better, wouldn't that be nice:)

Wednesday, November 5, 2008

Nov 5th (Kaylin's Birthday)

Brady and Kacie both went to see Dr. Jenkins today. Brady's blood pressure and urine were both normal so Dr. Jenkins said he has a 0% chance of having any further problems. He doesn't need to see him anymore.

Kacie's blood work looked a lot better. Her BUN was 40 and her creatinine was 6.01 and her phosphorus, potassium and sodium were all within normal ranges. He changed her epoghen shots to once a month now and her calcitrol to every other third day. Plus he only wants to see her once a month. If her creatinine stays about the same the next two months, in January he will start working towards a transplant for Kacie. It could possibly happen next spring or summer. He is still hopefull that her kidneys could improve enough. We will just have to wait and see and keep praying for a miracle.