Sunday, December 6, 2009

Donor Update

Kacie's Uncle Steve has been testing for the past couple of months. There has been a lot of up and downs through his experience. The great news is that he is a really good match. Dr. Jenkins told us that he didn't want to say that he was a better match than me because I'm Kacie's Mom but we had a really lucky match. So good that Kacie won't have to be on as much anti-rejection medicine after the transplant. The bad news has been all the conflicting tests results he has had on his kidneys so the doctors have put Steve through a lot of testing. However, the latest news is they are going to let him continue testing in Portland. Tentatively he is scheduled to go on Dec 30th. We are so grateful to Steve for his willingness to do this for Kacie and also for our backup donor who is standing by in case Steve is unable to proceed. We love you both for this incredible gift of life.

We are still waiting to hear from Tomorrow's Hope regarding placement for Brandon. He has been accepted and the last we heard it will be in January sometime. He is currently on five different medications that is keeping him somewhat stable but still very withdrawn. When I met with the staff from Tomorrow's Hope they said their first goal for Brandon would be to get him off some of his medication. I really hope they can do this because Brandon has gained a lot of weight due to one of the side effects from the meds and this has caused him to fall a lot more, but more than that I hope he will be happier.