Sunday, June 26, 2011

Myrtle Beach!

Grandma and Grandpa Romney took us to Myrtle Beach while they were here. We had a great time playing and swimming in the ocean, building sand castles, and looking for seashells. We also enjoyed eating yummy food, playing miniature golf, and going to MagiQuest.


Unfortunately, this is the only picture we took of all of us together, and because of the humidity, the camera lens kept fogging up. Oh well!!!


It was so much fun and we loved making some wonderful memories with Grandma and Grandpa.
Posted by Picasa

A Special Visit!


Grandma and Grandpa Romney came for a visit last week and we had a wonderful time. We love to have them come to North Carolina to be with us and it never seems like we have enough time together before it's over. Thank you, Grandma and Grandpa, for your willingness to come and support us for Parker's heart cath and also to visit for a few days. It was great! We love you so much!!!

Saturday, June 18, 2011

Another Year Down!

Yesterday Parker had his annual right heart catheterization, the routine procedure that we dread more than anything else. It is over now and he did great--phew! What a huge relief that is!!! 

Parker waiting with his new kitty.
We were at the hospital by 7:00am, the procedure was done by 10:20am and we were home by 4:00pm! He had to stay in bed after we got home yesterday and today he is supposed to take it easy (yeah, right...). Try telling that to a very active 4 year old :) 

In the holding room helping his kitty be brave.
The test still shows systemic pulmonary pressures in his lungs, meaning, the blood pressure in his lungs is about the same as his body's blood pressure. In a normal person, the pulmonary pressures should be about a quarter of the body's blood pressure. So, his pulmonary hypertension is still considered severe, but it is not worsening at this point. He remains stable and responsive to his medications--that's good news, as far as we're concerned! 

Talking to Kelsey and Connor on the phone after the procedure.
Thank you again for the many thoughts, prayers, and support. We truly felt them helping us through this! We continue to be incredibly grateful to our loving Heavenly Father, who allows us to care for this little miracle. What a blessing he is in our lives and the lives of all those who know him.

Eating McDonald's for lunch, while laying flat for 6 hours!
Parker, you are such a wonderful example to us and you are always so brave. We're so glad you did so well yesterday and that you like your new little kitty. We love you so much!!!

Wednesday, June 15, 2011

Bring it on!

Today is the first day of summer break and Parker was up at 6:45am--so much for sleeping in...Oh well :) The kids are so excited for summer! Time for popsicles, bare feet constantly running through the house, swimming lessons, screaming, baseball, fighting, splashing in the pool, breaking up fights, water balloons and squirt guns. Time for saying "I'm bored!", "He's bugging me!", "She's touching me!", and "There's NOTHING to do!" So, I say, BRING IT ON!!! I'm ready. I love summer. Don't you?

Wednesday, June 8, 2011

It's that time again...



Next Friday, June 17th, Parker will undergo his 4th right heart catheterization. Sigh. It is a fairly routine procedure with minimal risk, but because of our first experience with this procedure in April 2008, it is not something we look forward to at all. It is hard to forget something so life altering and traumatic. But the right heart catheterization is a necessary procedure that gives Parker's doctor more information and insight into his pulmonary hypertension and indicates what progress, if any, is being made. Parker is stronger and healthier than ever so we are hoping and praying that he will come through the procedure just fine without any complications or problems.

We sincerely believe that the faith and prayers from all of you during the past 3 years have brought many miracles to pass in Parker's behalf. We are so grateful for your continued love, prayers, and support, and we hope that we can ask for your faith and prayers once again. Also, for anyone who feels inclined to participate, we will be fasting for Parker this Sunday, June 12th.

There is one thing to look forward to--Grandma and Grandpa Romney are coming to help out and stay with us for a whole week! Yea!!!

Monday, June 6, 2011

Size Matters...


Exciting news! My home business Part of Me Pump Packs now offers 5 different sizes for all those little ones, like Parker, who use backpacks for the CADD-Legacy 1 IV pump.

About a month ago, I had decided I was going to shut down my website. It had been several months since I had received an order and there were a few things (like adding multiple sizes) that I wanted to do, but didn't think I could. Then I received a pretty big order, and so I thought, maybe I need to keep doing this! So, I sat down and worked out the different sizes. Before I could add the new sizes to my website, I received another order! I guess I'm not quitting for now :)

I'm so excited that I can finally offer backpacks to children from approximately 9 months to 5 years old! I know there's not a great need for these little backpacks, but it makes me happy to know that I have helped some families as they deal with a very challenging life change. Check out my website to see the new sizes that are available!